Interstitial Cystitis and Normal Cystoscopy Results

 Understanding Cystoscopy

Before we explore this topic further, let's grasp the basics of cystoscopy. In the diagnosis and treatment of interstitial cystitis, most doctors prefer to perform cystoscopy with hydrodistension. It's a medical procedure involving the insertion of a cystoscope—a thin, flexible tube with a camera—through the urethra into the bladder. This procedure allows doctors to visually inspect the bladder and urethra for abnormalities like inflammation, tumors, or signs of infection.

To learn more about Cystoscopy with Hydrodistension watch our YouTube Video

The Confusion Surrounding IC/BPS Diagnosis

The term "confusion" frequently emerges in the medical discourse on interstitial cystitis/bladder pain syndrome (IC/BPS). The diagnostic role of cystoscopy has been a matter of debate, with conflicting opinions from experts. Some argue that cystoscopy is essential for diagnosis, while others believe it's necessary only in complicated cases. The lack of a standardized protocol adds to the uncertainty, with variations in the approach even among reputable organizations like the European Society for the Study of Interstitial Cystitis (ESSIC) and the American Urological Association (AUA). The ESSIC guidelines and AUA recommendations are similar but not the same. 

Hunner's Lesions and Glomerulations

During a cystoscopic evaluation for IC/BPS, doctors often look for Hunner lesions and glomerulations. However, Hunner lesions, occurring in only 10-15% of patients, are not prevalent. While cystoscopy is beneficial in diagnosing these lesions, it may not provide conclusive results for patients without them.

Complexity of Interstitial Cystitis

The complexity of interstitial cystitis contributes to the challenge of obtaining clear diagnostic markers through cystoscopy. Unlike some conditions, IC may not leave visible signs during a routine cystoscopic examination. The condition may involve deeper layers of the bladder wall or stem from nerve-related issues that aren't easily detectable through standard procedures.

The Role of Hydrodistention

In cases where symptoms persist despite a normal cystoscopy, doctors may opt for hydrodistention. This involves filling the bladder to reveal hidden signs of inflammation and provides a more comprehensive view of the bladder's condition.

Empowering Patient Experiences

Patient experiences are crucial in the realm of IC. It can be disheartening when cystoscopy results come back normal, yet the pain and discomfort persist. If you find yourself in this situation, don't hesitate to communicate your concerns with your doctor. Seeking support and understanding is key, and organizations like ours are here to help.

You can email us at icindiaorg@gmail.com 

Watch the video 

Can you have a normal cystoscopy and still get diagnosed with IC (interstitial cystitis)?

Webinar on Medical Gaslighting

 🌟 Join Us for Interstitial Cystitis Awareness Month Activities and Webinar!🌟

September is recognized as Interstitial Cystitis Awareness Month, and in India, Interstitial Cystitis India (ICI) is committed to raising awareness about this condition that affects many lives. We have planned a series of enlightening activities throughout the month to empower patients and spread vital information.

Activities Highlights:

Patient Stories and Insights: Hear from individuals who have navigated the challenges of interstitial cystitis and discover their inspiring journeys.

Expert Talks: Engage with patient advocates as they provide valuable insights into the condition, treatment options, and self-care strategies.

Interactive Q&A Sessions: Get your questions answered by experienced experts in the field and gain a deeper understanding of interstitial cystitis.

Webinar Details

As a grand culmination of our efforts, we are hosting a webinar on September 30th, 2023, Saturday. This webinar will focus on the critical topic of ''Medical Gaslighting''—a concern that many patients face. We aim to shed light on this issue and equip patients with effective strategies to cope with it.

Webinar Agenda

• Understanding Medical Gaslighting
• Recognizing the Signs
• Empowering Yourself: Coping Strategies
• Expert Panel Discussion and Q&A

How to Enroll

To participate in the insightful webinar, please enroll by sending an email to **icindiaorg@gmail.com**. Kindly provide your name and contact details for registration. Spaces are limited, so be sure to secure your spot early.

Join us in spreading awareness, supporting one another, and advocating for a better understanding of interstitial cystitis. Let's make a difference together.

Stay connected with us on our website and YouTube channel for updates and announcements throughout the month. Your participation can change lives and create a more compassionate world for those affected by interstitial cystitis.

Together, we can make Interstitial Cystitis Awareness Month impactful and meaningful. See you there!

Interstitial Cystitis India (ICI)

Can You Have A Normal Cystoscopy Result in IC?

It seems like "confusion" is a word that comes up a lot in the medical literature when it comes to interstitial cystitis/bladder pain syndrome (IC/BPS). There's been a lot of debate about whether or not cystoscopy should be used to diagnose and classify IC/BPS. Some experts from the European Society for the Study of Interstitial Cystitis (ESSIC) say that cystoscopy is necessary for diagnosis, while others like the American Urological Association (AUA) think it's only needed for more complicated cases. Even the specific protocol for cystoscopy and HD in IC/BPS can vary quite a bit and there's no clear consensus.

What is Cystoscopy? 

A cystoscopy is a medical procedure in which a thin, flexible tube with a camera at the end, called a cystoscope, is inserted into the urethra and guided into the bladder. It's used to examine the lining of the bladder and urethra for any abnormalities, such as inflammation, tumors, or signs of infection.

Diagnosis

During a cystoscopic evaluation for IC/BPS, the two most common things doctors might see are Hunner lesions and glomerulations. Hunner lesions aren't very common and only about 10-15% of patients with IC/BPS show consistent cystoscopic signs. While cystoscopy can help diagnose Hunner's Lesion, the results might not be conclusive for patients without HL.

Can You Have A Normal Cystoscopy Result in IC?

It is indeed possible for you to have a normal cystoscopy, meaning that the lining of the bladder appears normal without any obvious signs of inflammation or damage. However, still experience the symptoms of interstitial cystitis. The reason behind this lies in the complexity of interstitial cystitis itself. Unlike some other medical conditions, IC doesn't always leave clear, visible markers during a cystoscopy. It might be related to the fact that IC could involve deeper layers of the bladder wall or even result from nerve-related issues, which wouldn't be easily detectable through a routine cystoscopy. When faced with a situation where symptoms persist despite a normal cystoscopy, your doctor might include a hydrodistention, which involves filling the bladder to potentially reveal hidden signs of inflammation, to get a more comprehensive view of the bladder.

Endnote:

Patient experiences are really important. It can be frustrating when your cystoscopy results come back normal but you're still feeling pain and discomfort from interstitial cystitis. Talk to your doctor about your concerns. Or else you can contact us. Don't hesitate to reach out for help!

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